Lyme Disease: ‘Tick’ed off at the CDC

Lyme Disease – the great pretender – is more prevalent than most are aware of. Commonly misdiagnosed as multiple sclerosis or fibromyalgia, Lyme lurks in the blood and spirochetes penetrate and reproduce in all of the body’s organs and tissues.

With a disease this nasty, why is it being ignored?

Before I continue with this article, I want to debunk a few ‘myths’ surrounding this disease that are supported by the CDC..

  1. 30 days of antibiotics (usually doxycycline) are NOT ENOUGH to get this out of your system. It can take month to even years to treat depending on the severity of the case.
  2. There is a beef allergy associated with Lyme ONLY. If you feel poorly after beef consumption, please look into being tested.
  3. You do not need to have the bullseye rash to have Lyme be a possibility – most people actually do not have this.
  4. You can get Lyme from other places besides ticks. Including mosquito bites.
“Bullseye Rash” commonly associated with Lyme Disease

First, let’s begin with my story…

It began when I was 13 – I wasn’t able to keep upright and began to fall down all the time. The MRI revealed lesions on my brain that didn’t quite match to multiple sclerosis. Despite this, I continued to be misdiagnosed for over a year. I was confused as to why I had taken the 30 days of antibiotics, I was only getting worse. I needed to be in a wheelchair most of the time at this point, and other symptoms started to crop up. I began to deal with pretty severe nausea and pain all over my body, so much so that I didn’t want to move anyway.

Many doctors will tell you that 30 days of doxycycline is enough to completely eradicate the disease. This is so far from the truth. The spirochete has a protective coating over itself so most drugs cannot penetrate them to kill the disease. It is cyclical in its regeneration pattern, so only treatment at a certain point in the repeating cycle has a chance to make it to the bugs. It’s an uphill battle with misinformed doctors and a public who doesn’t yet know what a day in this life is like.

Even after two years of IV antibiotics, I worsened. I developed anaphylactic reactions to random foods, one of which being the Alpha-Gal beef allergy commonly associated with the disease. I had a stroke. I had lost most of my memory and could not read or retain information. I had fits of blindness, anxiety and depression, and of course the endless pain. Still, seven years  had passed and there was no answer besides to continue and press on. I treated with herbal remedies such as Cats Claw and Banderol (I will talk more about this in other articles) and years of hardcore antibiotics. I had lost a good deal of hair and hope that I had left. My thyroid and adrenal system was trashed from the disease and my gastro system was a mess from the drugs. I had developed thyroid diseases, mast cell activation disorder, anxiety disorder and OCD. I had to take a break.

Currently after having C, I am doing a bit better. Pregnancy has been known to lessen the severity of symptoms felt or put a person in remission due to the hormone imbalances. It was almost a decade to get here though. I still deal with the aftermath of the damage but this is why I am launching this business and blog – to heal by food – because I cannot tolerate any other courses of treatment. I am currently working on my BS in integrative medicine and plan to pursue a graduate degree in nutrition and alternative therapies so that I can better coach people with similar issues.

I call out insurance companies that don’t want to pay as the reason that many do not get better or get misdiagnosed per the CDC’s inaccurate information that they publish. They have been proven wrong in this arena by several acclaimed scientific studies. As I write more on this for the blog I’ll go more in depth with natural treatments and aids for dealing with this. Above all, find a support person to reach out to for help. It is absolutely overwhelming and you cannot make it through this if you don’t get someone involved. For me, that person was my mother. She was there for me through all the surgeries, hospital stays, late night crying fits about where to go from ‘here.’ I encourage you if you feel any symptoms in the graphic above, to call your doctor and see about getting tested.

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